About Me
L to R: Ma’ayan with brothers Ziv, in back, and Jacob and Zac in front.
I am committed to using my disability organizing, advocacy, and activism experience to increase understanding and stop the shaming, marginalization, and stigma targeted at people who have chronic pain and illnesses.
For nearly two decades I have lived with severe chronic pain and illness due to congenital hypermobility, fibromyalgia, and depression and anxiety disabilities. Whether working with you individually, teaching workshops, or through my blog, my purpose is to uplift our collective power as people in pain.
My Commitment to Activism
I was born with my fist in the air. While in retrospect this was likely foreshadowing my hypermobility condition, I like to think it was my feisty spirit and commitment to agitating for change.
Being a proud older sibling to my disabled foster sister and adopted younger brothers, Zac and Jacob, disability rights were important to me early on. As a fat, queer, gender non-conforming, Jewish kid I experienced bullying and understood the hurt of being “othered” from a young age. I became increasingly politicized as I found queer community in my early teens, which catalyzed my commitment to queer, trans, anti-racism/white supremacy, and economic justice activism.
I also regularly experienced periods of “unexplained“ pain and illness that severely escalated in my late teens and early twenties. By the age of 24 I was legally “permanently disabled” and reliant on public assistance. I felt destroyed. But the more I confronted my deep shame, ableism, and internalized stigma, the more I recognized how chronic pain and illness prejudices are inextricably intertwined with the systems of oppression I am determined to help abolish.
This is how my Pain Activism & Education mission to UNSHAME PAIN was born. Since 2015 I have been writing, teaching, and making media about pain as an intersectional social justice issue.
Research
My research encompasses Western pain ideologies at the intersections of colonialism, white supremacy, and ableism. I have a book in development about dismantling the dominant narratives stigmatizing pain.
Education
Master of Fine Arts in Creative Writing in progress
Nonfiction and narrative medicine focus
Dominican University of California
Master of Arts, 2024
Disability Studies
School of Professional Studies at City University of New York
Bachelor of Arts, 2021
Concentration in Pain Studies and Social Change
School for Continuing and Professional Studies at DePaul University.
Work & Organizing
Sibling Transformation Project
InterAct: Advocates for Intersex Youth
Sins Invalid
Selected Awards & Publications
Nonfiction finalist, Barbara Deming Memorial Grant, 2021
“Unshame the Pain,” North Bay Bohemian, 2017
Grant recipient, Awesome Foundation Disability Chapter, 2017
Contributing author, Gay, Lesbian, and Transgender Journal of Issues in Education, Haworth Press, 2005